It will be held on Saturday 13 April, in the main hall of the Congress Palace of theAOU G. Martinothe Seventh Day for Neuromuscular Diseases (GMN). An event taking place simultaneously in 19 cities, reference centers for the study of neuromuscular diseases: Ancona, Bari, Bologna, Brescia, Cagliari, Chieti, Genoa, Messina, Milan, Naples, Palermo, Parma, Pisa, Rome, Siena, Turin, Trento, Udine and Verona.
The Messina event – coordinated by Prof. Antonio Toscano, Director of the ERN-NMD Center of Messina for Neuromuscular Diseases of the AOU G. Martino – represents not only an opportunity for discussion between clinicians to analyze progress and new therapies in the field of neuromuscular diseases, but above all to draw attention to the importance that a timely diagnosis has for adequate multidisciplinary management, which is necessary to promote a better quality of life for these patients.
The event – promoted by the ASNP (Italian Association for the Study of the Peripheral Nervous System), by the AIM (Italian Association of Myology) and by the SIN (Italian Society of Neurology).
The first part of the morning will be dedicated to the main updates on prevention and therapies with a space dedicated to regional networks and the point of view of patient consultations and associations. A focus will also be dedicated to children and childhood diseases. The event will end with a round table made up of representatives of institutions, local and family doctors, healthcare workers, bioengineers, patients and associations with the aim of evaluating the ways in which to standardize diagnostic and therapeutic approaches at a national level, analyzing how new technologies can facilitate this path.
Neuromuscular diseases (NMS) are 90% rare diseases, often degenerative in nature, with a progressive trend that varies over the years, sometimes highly disabling. Onset can occur in childhood, adolescence or adulthood. GMN was born in 2017 from an idea of Angelo Schenone, full professor of Neurology at the University of Genoa and past-president of the ASNP, and Antonio Toscano, full professor of Neurology at the University of Messina and past-president of AIM .